The QutubMinar Turns Red for World Hemophilia Day
- Hemophilia Federation (India) and Shire India join hands to turn the spotlighton Hemophilia and its management
- About 130,000 patients are estimated to be suffering from Hemophilia who need immediate and holistic care and treatment to lead a normal life
New Delhi, 16th April 2018: Hemophilia Federation (India), a non-profit self-help organization working for people with Hemophilia, and Shire India, a leading global biotechnology company focused on serving people with rare diseases, came together in solidarity to launch a unique initiative to turn the spotlight on Hemophilia and its management. Delhi’s iconic monument, QutubMinar was lit up with red lights as part of the World Hemophilia Day campaign to increase awareness and understanding of this genetic disease in the society. Hemophilia afflicts 1 in 10,000 people and with the right treatment and holistic care, these patients can potentially lead a near-normal life.
A panel discussion involving Mr. Vikash Goyal, President, Hemophilia Federation (India), Mr. Mukesh Garodia, Vice–President – Development, Hemophilia Federation (India), Ms. Vinita Srivastava, National Consultant & Coordinator, Blood Cell – NHM, MoHFW, Dr. Tulika Seth, Professor Hematology, All India Institute of Medical Sciences (AIIMS), Dr. Brigadier Ajay Sharma, Professor & Head, Department of Hematology & Center for Stem Cell Transplantation & Research, Sir Ganga Ram Hospital and Mr. Vineet Singhal Country Head, Shire India was organized in the backdrop of QutubMinar that defined the vision of managing Hemophilia, providing much-needed hope for thepatients to lead a near-normal life. The panel focused on the topic of improving and sustaining care for people with hemophilia, improving lives by training experts in the field to facilitate early diagnosis; advocating for sufficient supply of quality treatment products; and educating and empowering people with right resources and information to help them live better.
Speaking at the event, Mr. Vikash Goyal, President Hemophilia Federation (India), said, “Till date, Hemophilia Federation (India) has identified over 20,000 children and adults with Hemophilia. However, considering the population of India and lack of awareness among the people this figure may be closer to 1, 30,000 (1.3 lakhs). Therefore, there is a huge need for trained doctors and testing facilities to ensure identification and diagnosis of the people suffering from hemophilia. We are proud to be part of this initiative as we believe that a well-informed society and patients can make a difference in managing the Hemophilia disease conditions. Today is a landmark moment as the stakeholders have come together under the magnificent iconic QutubMinar to mark the beginning of a national commitment to address Hemophilia.”
Dr. Tulika Seth, Professor Hematology, All India Institutes of Medical Sciences (AIIMS) said, “With access to adequate factor replacement, appropriate monitoring and good physiotherapy, all children with Hemophilia can lead productive and pain free lives. It is important to inform the public about this disorder, so that if children develop joint swellings after injury or increased bleeding, the families can come forward for early diagnosis. We need a network of trained health care facilities and providers so that the families do not need to travel far off centers for diagnosis or treatment.”
Also in attendance was Mr. Vineet Singhal, Country Head, Shire India, commented: “At Shire, we have a unique responsibility to champion underserved patient communities and Hemophilia is one of them. The patients with Hemophilia may have a difficult path to diagnosis and access to care and therefore we are focused on building partnerships in such patient communities around the world to empower them with education, expand awareness, enable earlier diagnosis and provide best-in-class high quality & efficacious therapies. Today is an important day for us and we are privileged to be part of this national commitment to raising awareness about Hemophilia.”
Hemophilia is a hereditary genetic blood disorder that impairs the body’s ability to control blood clotting where patients bleed for longer time spontaneously or following an injury. A serious disorder, it puts the patient at risk of his life due to excessive bleeding. The awareness about the disease and its management has been the biggest hurdle behind the inaccessibility of appropriate treatment for patients.
For further information please contact:
Shikha Arora: Shikha.[email protected] 9811237987
Vikash Goyal: [email protected]9845100122
Mukesh Garodia: [email protected] 9864023021
About Hemophilia Federation (India)
HFI is the only non-profit, self-help organization working for the welfare of people with Hemophilia. With the network of 90 Chapters spread across the country, we aim to reach out to more and more PWH and provide quality care, affordable treatment, educational & psycho-social support and economic rehabilitation. We have so far been able to identify more than 16,000 hemophiliacs across the country out of estimated 1.2 lacs (i.e. 1 in every 10,000 population).
Shire is the global leader in serving patients with rare diseases. We strive to develop best-in-class therapies across a core of rare disease areas including hematology, immunology, genetic diseases, neuroscience, and internal medicine with growing therapeutic areas in ophthalmics and oncology. Our diversified capabilities enable us to reach patients in more than 100 countries who are struggling to live their lives to the fullest.
We feel a strong sense of urgency to address unmet medical needs and work tirelessly to improve people’s lives with medicines that have a meaningful impact on patients and all who support them on their journey.
Statements included herein that are not historical facts, including without limitation statements concerning future strategy, plans, objectives, expectations and intentions, projected revenues, the anticipated timing of clinical trials and approvals for, and the commercial potential of, inline or pipeline products, are forward-looking statements. Such forward-looking statements involve a number of risks and uncertainties and are subject to change at any time. In the event such risks or uncertainties materialize, Shire’s results could be materially adversely affected. The risks and uncertainties include, but are not limited to, the following:
- Shire’s products may not be a commercial success;
- increased pricing pressures and limits on patient access as a result of governmental regulations and market developments may affect Shire’s future revenues, financial condition and results of operations;
- Shire depends on third parties to supply certain inputs and services critical to its operations including certain inputs, services and ingredients critical to its manufacturing processes. Any disruption to the supply chain for any of Shire’s products may result in Shire being unable to continue marketing or developing a product or may result in Shire being unable to do so on a commercially viable basis for some period of time;
- the manufacture of Shire’s products is subject to extensive oversight by various regulatory agencies. Regulatory approvals or interventions associated with changes to manufacturing sites, ingredients or manufacturing processes could lead to, among other things, significant delays, an increase in operating costs, lost product sales, an interruption of research activities or the delay of new product launches;
- the nature of producing plasma-based therapies may prevent Shire from timely responding to market forces and effectively managing its production capacity;
- Shire has a portfolio of products in various stages of research and development. The successful development of these products is highly uncertain and requires significant expenditures and time, and there is no guarantee that these products will receive regulatory approval;
- the actions of certain customers could affect Shire’s ability to sell or market products profitably. Fluctuations in buying or distribution patterns by such customers can adversely affect Shire’s revenues, financial conditions or results of operations;
- failure to comply with laws and regulations governing the sales and marketing of its products could materially impact Shire’s revenues and profitability;
- Shire’s products and product candidates face substantial competition in the product markets in which it operates, including competition from generics;
- Shire’s patented products are subject to significant competition from generics;
- adverse outcomes in legal matters, tax audits and other disputes, including Shire’s ability to enforce and defend patents and other intellectual property rights required for its business, could have a material adverse effect on the Shire’s revenues, financial condition or results of operations;
- Shire may fail to obtain, maintain, enforce or defend the intellectual property rights required to conduct its business;
- Shire faces intense competition for highly qualified personnel from other companies and organizations;
- failure to successfully execute or attain strategic objectives from Shire’s acquisitions and growth strategy may adversely affect the Shire’s financial condition and results of operations;
- Shire’s growth strategy depends in part upon its ability to expand its product portfolio through external collaborations, which, if unsuccessful, may adversely affect the development and sale of its products;
- a slowdown of global economic growth, or economic instability of countries in which Shire does business, could have negative consequences for Shire’s business and increase the risk of non-payment by Shire’s customers;
- changes in foreign currency exchange rates and interest rates could have a material adverse effect on Shire’s operating results and liquidity;
- Shire is subject to evolving and complex tax laws, which may result in additional liabilities that may adversely affect the Shire’s financial condition or results of operations;
- if a marketed product fails to work effectively or causes adverse side effects, this could result in damage to Shire’s reputation, the withdrawal of the product and legal action against Shire;
- Shire is dependent on information technology and its systems and infrastructure face certain risks, including from service disruptions, the loss of sensitive or confidential information, cyber-attacks and other security breaches or data leakages that could have a material adverse effect on Shire’s revenues, financial condition or results of operations;
- Shire faces risks relating to the expected exit of the United Kingdom from the European Union;
- Shire incurred substantial additional indebtedness to finance the Baxalta acquisition, which has increased its borrowing costs and may decrease its business flexibility;
- Shire's ongoing strategic review of its Neuroscience franchise may distract management and employees and may not lead to improved operating performance or financial results; there can be no guarantee that, once completed, Shire's strategic review will result in any additional strategic changes beyond those that have already been announced;
- the potential uncertainty resulting from the announcement by Takeda Pharmaceutical Company Limited that it is considering making an approach to Shire regarding a possible offer for Shire; anda further list and description of risks, uncertainties and other matters can be found in Shire’s most recent Annual Report on Form 10-K and in Shire’s subsequent Quarterly Reports on Form 10-Q, in each case including those risks outlined in “ITEM1A: Risk Factors”, and in Shire’s subsequent reports on Form 8-K and other Securities and Exchange Commission filings, all of which are available on Shire’s website.
All forward-looking statements attributable to us or any person acting on our behalf are expressly qualified in their entirety by this cautionary statement. Readers are cautioned not to place undue reliance on these forward-looking statements that speak only as of the date hereof. Except to the extent otherwise required by applicable law, we do not undertake any obligation to update or revise forward-looking statements, whether as a result of new information, future events or otherwise.
Check out those popular press releases
- Houston Plastic Surgery Practice Launches New Website Design
- Airport transfers take you to business meetings
- Usfidelis And Nascar Angels Join Efforts To Make A Difference In The Life Of A Deserving Swimming Coach
- Differences Between a High-risk Credit Vehicle Loan and a Everyday Automobile Loan
- The Science Power & SCINET CORPORATION: La mejor idea es la acciÃ³n!